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Stephanie Romer
- Nov 28, 2021
- 0 min
CHD Babies & Brain Development
Babies born with Congenital Heart Defects or Disease often have developmental challenges...
Stephanie Romer
- Nov 28, 2021
- 0 min
Disability Housing Crisis
The disability housing crisis...
Stephanie Romer
- Nov 28, 2021
- 0 min
Trump & The Affordable Care Act
Trump & The Affordable Care Act...
Stephanie Romer
- Nov 28, 2021
- 0 min
Mental Health & Disabilities
"Not once was I offered mental health services. Not once was the emotional toll of my experiences addressed or acknowledged."
Stephanie Romer
- Nov 22, 2021
- 0 min
CHD is NOT a Childhood Illness
CHD is NOT a Childhood Illness
Stephanie Romer
- Nov 16, 2021
- 0 min
Stephanie's Story: HLHS, 31
The word determined doesn’t even explain it. I was on a mission to make my body indestructible...
Stephanie Romer
- Nov 1, 2021
- 0 min
Advocate's Voice
I am a CHD Advocate and my voice counts...
Stephanie Romer
- Oct 31, 2021
- 0 min
Suicidal Feelings, Not Wanting to Die
To The Person Who Feels Suicidal But Doesn't Want To Die
Stephanie Romer
- Oct 15, 2021
- 0 min
You Are Not Obligated to be Healthy
You are not obligated...
Stephanie Romer
- Sep 29, 2021
- 1 min
Executive Functioning & CHD Brain
Adults with CHD are at a higher risk for Executive Functioning difficulties...
Stephanie Romer
- Aug 9, 2021
- 0 min
Quick Laugh: CHD Toddler Defends Herself
This little girl is literally a CHD Fighter. An adorable CHD girl puts little boy in a headlock...
Stephanie Romer
- Jul 29, 2021
- 0 min
Doctors with Disabilities
Must read! "Doctors are often portrayed as pinnacles of health, superhumans..."
Stephanie Romer
- May 21, 2021
- 0 min
Shout Out to YOU: Being sick is a Full Time Job!
Shout out to those who may feel they do nothing when in reality having an illness is a FULL TIME JOB...
Stephanie Romer
- Mar 25, 2021
- 0 min
Heart in a Box Transplant
"A man who received a transplanted heart that was kept 'alive' for five hours said he feels like he has been given "a whole..."
Stephanie Romer
- Feb 14, 2021
- 0 min
HLHS & Baboon Heart
HLHS baby is given Baboon Heart...
Stephanie Romer
- Feb 3, 2021
- 0 min
Travel Tips
Travel Tips for CHD Adult and other illnesses who have to be creative to take the best care of their bodies...
Stephanie Romer
- Jan 30, 2021
- 0 min
Speak Up to Doctors
Why it's important to speak up at appointments...
Stephanie Romer
- Jan 1, 2021
- 1 min
Wheelchair Access to Beaches
“Access represents freedom...”
Stephanie Romer
- Dec 31, 2020
- 0 min
Holidays in the Hospital
Remember all of the patients fighting for their lives, undergoing surgeries and traumatic medical experiences...
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