Travel Tips for CHD Adult and other illnesses who have to be creative to take the best care of their bodies...

Why it's important to speak up at appointments...

“Access represents freedom...”

Remember all of the patients fighting for their lives, undergoing surgeries and traumatic medical experiences...

I was on a mission to save children and disabled individuals who could not speak for themselves by teaching families, patients, doctors...

Never assume your child, teen, or adult loved one is faking or being dramatic. They are struggling in ways you may never understand...

DEAR CHD, If you were face to face...

One of the Oldest HLHS Survivors turns 34 years old...

"They brightened the days of families who had children facing congenital heart defects..."

Keep moving your body to the best of YOUR ability...

At my first CHD appointment for 2019 my doctor said...

Dear Patient...

Meet Stephanie Romer via Video and understand Empowerment Coaching! I can't wait to work with you!!

We've been through hell...

I have spent my life in and out of hospitals and countless doctors appointments. It is a crazy journey living this life but I have empowered

CHD baby abandoned at hospital...

Why Underemployment Plagues People with Disabilities...

Honoring First Generation CHD Parents...

Teaching Children About Disabilities...