❤️🔥 KEEP RISING ❤️🔥
- Stephanie Romer
- 5 hours ago
- 4 min read
Updated: 2 hours ago
VIDEO:
KEEP RISING by Stephanie, 40, HLHS
VIDEO TOPICS:
🙏 Message to the OGs (everyone following me for years) Thank you!!!
🎙️Random Talking 😂🤷🏻♀️
“Why don’t you donate a % of book proceeds to or Advocate with CHD Organizations?”
Heres why:
🔎Please stop stealing my content, I’ve been watching you for years, suffering in silence, hoping certain Advocates & Organizations would stop.
I am back and really hoping this does not continue.
🔎Update & Please stop stealing my content, I’ve been watching for years, suffering in silence, hoping certain Advocates & Organizations would stop.
I am back and really hoping this does not continue.
As a coined Advocate representing Taboo Subjects aprox 20 years ago by the masses, I have been discussing everything God put in me to talk about.
It turned out many of these subjects were things people were uncomfortable with and organizations would not represent or post.
I created CHD Legacy on the foundation of sharing the “Raw Reality of CHD” used to be my slogan.
I am now speaking about a Taboo Subject I have never been open about publicly, yet, because it just wasn’t time. And now it is.
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Many Organizations use “Advocates” as Companies use “Interns” except with SOME Organizations and Companies, we as Advocates give our entire hearts & souls to this, are not working toward a full-time career because we can never have one, and are innocently wanting to be or are Advocates to teach what people running these Organizations & Companies could never know on their own without living in our literal bodies. We then use this fuel to TEACH with little to no credit, and definitely no payment.
There have been “older” generations of Advocates as well who have anger toward younger Survivors becoming Advocates and then stealing their content due to a misplaced anger or pain of not having opportunities in “their day.” Yet, we all are aging and we all do not have same opportunities & some life altering medical advancements as the younger generations now get to experience. This is just evolution of Society and I thought what we ALL wanted to help each other live as long as possible?
This is what we Advocate for, so why have jealousy, anger etc?
Why try to hurt our own people or keep us down when TOGETHER we would have risen 100 fold had the scheming of certain organizations never taken place. THIS is what CHD Legacy was built on but WHY couldn’t it go anywhere? Bc I am half of a human being doing work of 30 people.
So instead? SOME Organizations & Advocates took my content and put their names on it.
I’ve been watching this happen to MANY of us (Advocates & Families & Survivors) for years.
And in the Political world of CHD? Many of us have written bills, worked relentlessly hard on passing laws for disability and Healthcare etc, that some will never know the names of who truly did the original work…and it was US.
The OG Advocates of Complex CHD through the past 30 years. We fall under the less severe CHD Advocates who were Pioneers in original CHD Surgeries and some are still living well into their 60’s-80’s.
This is a smaller community than people remember sometimes. We know people others don’t know we know who then report this information back to people they take from.
This doesn’t mean keep your meetings more private, it means increase your integrity.
INVEST in us by paying and hiring Advocates who will truly create change.
* There have been many of us who have spoken about this through the years. Groups of CHD Survivors and Parents seeing this for themselves as their children grow wanting to be Advocate’s and realizing we don’t get paid for anything unless we have an extremely PC life and follow the Matrix.
CHD Legacy is the opposite.
I have said one day I will talk about it and hope others do as well. Well, here I am. I understand people do not feel comfortable publicly speaking about the Taboo Subjects I have been speaking about for 20 years now, but if you are please reach out.
Our lives are hard enough finding work, paying our bills, having energy to do life AND being an Advocate for Free for organizations sitting on millions.
This needs to stop.
This (and a million other reasons) is why I created CHD Legacy, with full intent on paying my Advocates one day, if I ever got to that point. But instead I was swallowed by Organizations profiting off of my content, spinning it into PC messages and posts, and growing their PC Narratives that everyone who follows me knows I do not follow.
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You all know me by now, even if I stand alone, I still carry my torch. 🔥 …bc I know what God puts through me is for many who may not be ready for my content, but I think as Society keeps moving forward we are almost there… KEEP RISING! ❤️🔥
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I truly hope I live to see the day that more Organizations in all areas of Disability World PAY their Advocates and watch the Disabled Community burst into flames of transforming Society in a way (healthy) humans could never imagine. We have SO MUCH TO TEACH and deserve CREDIT (at the very least omgosh) and Payment to support the inability to work full time as we age. Aging for us is like 20-40.
Email to continue this conversation for any further collaboration.
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*Also my video is partially blocked because of a song, so the compilations won’t be the same.
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