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STEPHANIE ROMER

AUTHOR | WRITER
COACH | MENTOR 
MODEL | SPEAKER
ADVOCATE: CHD

DISABILITY + CHILD RIGHTS

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FREE COACHING OR MENTORSHIP CONSULT

ORDER SIGNED COPY OF QUIETING THE CLOCK

COLLABORATION | EVENTS | INTERVIEWS

 

TEXT 937.319.4422 

Stephanie Romer, HLHS, Author, Coach, Model, Quieting the Clock Memoir

STEPHANIE ROMER, AUTHOR
CHD-HLHS Survivor: Born with Half A Heart
Multi-Abuse & Medical Trauma Survivor
Certified Health & Empowerment Coach:
Trauma + Relationship Recovery Specialist
Social Activist: Disability & Child Rights
Licensed Foster Mother

                                                                 

Quieting the Clock Memoir of a Girl Facing Death and Chasing Freedom, Book of 2023, CHD Book, Spoonie book, chronic illness, Book Club Stephanie Romer, heart defect, heart surgery, RAINN, abuse, congenital heart defect, disease, quieting clock, quiet clock, quiet mind, HLHS,

Born with Complex Congenital Heart Disease, Stephanie Romer is one of the oldest people in the world living with half a heart, called Hypoplastic Left Heart Syndrome, HLHS: an often terminal heart condition.

Quieting the Clock takes you through the first fourteen years of her life as she fights to survive. She develops a different way of looking at the world, combating the relentless ticking time bomb in her chest and unwavering war on her mind. In the midst of ongoing abuse and medical traumas, she becomes hypervigilant of saving everyone but herself. Battling undiagnosed ADHD, debilitating anxiety and depression, she questions authority and fights for control of her own body by taking life into her own hands. Tick...Tick...Tick...

*skip to 3:00 mins in for the Announcement! 

WHAT READERS ARE SAYING:

"Stephanie articulately and eloquently, and at times very humorously, describes the dynamic and parallels of growing up in and out of the hospital while simultaneously dealing with various forms of abuse. I found her writing riveting, enthralling, heartbreaking, and I couldn’t put it down."

"This is such a well written book about living with a chronic illness while dealing with things no child should ever have to experience. Her story is heart wrenching, but her bravery is admirable. I laughed and cried throughout this book. Would recommend to anyone!"

Quieting the Clock Memoir of a Girl Facing Death and Chasing Freedom, Stephanie Romer

Thank you!

GALLERY

"I thought doctors were so cool and I loved their outfits! Doctors were heroes to me, whose coats were capes, and stethoscopes a tool for their magic powers.
I felt special that I had so many doctor friends.
I looked up to them and wanted to be a doctor one day so I could wear their silly slippers and fancy white coat."


-Stephanie Romer, Quieting The Clock: The Baby
Pic on Top Left: Pre-Fontan Party, 1989   Pic on Top Right: Post-Fontan, 1990

"At six years old, I was getting stronger, with minimal side effects so far…so I decided I wanted to be more active like my brother, cousins, and peers and try another year of t-ball."

-Stephanie Romer, Quieting The Clock: Too Sick To Love